Today we are very blessed, my daughter Tashi asked if she could write a blog about growing up in Whistler with Alopecia Areata (AA).. What is that you ask?????
Alopecia Totalis http://bit.ly/bS6d31
Is the rarest form of hair loss 1-2%, you lose all your hair on your scalp as well as eye brows, lashes and body hair. The cause of AA is unclear, but it is now believed to be an autoimmune disorder. It has been linked with stress in some cases, however many people with stress-free lives have experienced Alopecia. Tashi was a three-year old child when we noticed the start of Alopecia, within six months she was completely bald – this is her story in her own words.
Hello my name is Tashi Kawaguchi and I have grown up in a small town called Whistler, but that is not what I wanted to talk about. I want to talk about how I lost my hair. Well here’s how it all started.
I was only three years old when I lost ALL my hair. Not one speck was even left. We had just returned from Hawaii and little patches of hair could be found on my pillow each morning. It started with just a little circle, but kept growing… until I was bald.
It did start growing back the next year when I was four, and what do you know – I lost it all again. It was really heart breaking. I never knew anyone else who was bald like me. We bought a wig but I pulled all the hair in front out trying to keep it on my head… So momma bought me head scarves in every color.
People don’t think about how important your eye brows and lashes are, but it keeps dust out of your eyes and when you’re swimming in a pool without lashes your eyes burn and it is hard to see. My eyes are always red. Sunlight is also extra bright.
I realized soon enough that there are far worse things to have besides AA, yesterday my mom showed me a video of a beautiful woman who flies planes and she was born with no arms; she said she was uncomfortable when people stared at her; I feel that way too, especially at the pool after swimming.
All my friends say they don’t think about me having no hair, they love me and I am beautiful with or without hair. Some people give me things little chocolate cake and presents because they probably think I have cancer and am having chemotherapy.
Christmas in Cambodia
When I was six years old my mom and friends at the Teddy Bear Daycare decided to raise $10,000 to help a small village in Cambodi grow a vegtable garden and a fresh drinking well .
This was to learn how other children in the world live and so I could appreciate where I lived. I saw videos and pictures of children living in a garbage dump and with arms and legs missing because they live in a country where war has been and bombs lay in fields until some poor child steps on one and it blows up.
My auntie Michele bought me a new wig for Grade Four, I love it but yet I still walk the earth with no hair. I said I would give anything to have my hair grow back but it hasn’t. I’ve done Chinese medicine (wow that was some of the yuckiest stuff I have ever tasted before), rubbed health products into my scalp, right now I sit for 30 minutes under a heat lamp… all thanks to my auntie Michele who keeps trying everything to get my hair to grow.
I don’t get to excited when a few hairs grow around my eyes or on my head because they have always disappeared. I still pray for hair too. Someone told me you lose one thing and get another. I am a great dancer and I can sing too.